Support Groups

Canadian Skin Patient Alliance

The mission of the Canadian Skin Patient Alliance is to improve the health and well-being of people across Canada affected by skin, hair, and nail conditions, through collaboration, advocacy and education.

E-mail: [email protected]
Web site: Canadian Skin Patient Alliance


National Alopecia Areata Foundation (NAAF)
Address: PO Box 150760, San Rafael, CA 949915-0760
Tel: 415-472-3780
Fax: 415-472-5343
Web site: National Alopecia Areata Foundation (NAAF)


GTA Chapter of the NAAF
Toronto and all surrounding areas welcome to join us! Meetings start September 2008 and will run every other month.
Please contact: Julie Powers8
Tel: 905-954-1218
E-mail: [email protected]


Alopecia World
Alopecia World is a social networking site for people living with hair loss, their loved ones and friends. Join today for support, to encourage others and make new friends. It’s 100% free!
Web site: Alopecia World


BCCNS Life Support Network
This is a non-profit organization whose mission is to provide counselling and support services to children and adults all over the world who are faced with the challenges of an inherited form of skin cancer, one of many manifestations of a syndrome most commonly known as BCCNS, NBCCS and/or Gorlin Syndrome.
Canadian Representative: Patricia Pearsell
Address: Whitby, ON
Tel.: 905-668-4913
E-mail: B[email protected]
Web site: BCCNS Life Support Network


Dystrophic Epidermolysis Bullosa Research Association of Canada (DEBRA Canada)
Purpose: Provide a focal point to enable and empower individuals and families affected by EB to help themselves nd each other by sharing their experiences, their knowledge and mutually support one another. Increase awareness and knowledge of EB and DEBRA Canada throughout the country, particularly among the various levels of government and within the health and medical community. Act as an advocate for improvements in health, medical, educational, social, economic and public and private policies, programs and institutions on behalf of all EB sufferers and their families, individually and for the collective benefit of all. Organize meetings, roundtables and conferences for all EB sufferers, their families, caregivers, health and medical practitioners and government officials. Produce and publish information materials for the education, health and medical professions and the general public in both official languages.
Address: Postal Office Fruitland, Box No. 11111, Stoney Creek ON L8E 5P9
Tel.: 1-800-313-3012
E-mail: [email protected]
Web site: Dystrophic Epidermolysis Bullosa Research Association of Canada (DEBRA Canada)


The Epidermolysis Bullosa Research Foundation of Canada
Address: 13-59 Roncesvalles Ave, Toronto ON M6R 2K5
Tel.: 416-532-4400
E-mail: [email protected]


Ectodermal Dysplasia Society
Web site: Ectodermal Dysplasia Society


Eczema Society of Canada
Executive Director: Ms Amanda Cresswell-Melville
Tel.: 905-535-0776
Web site: Eczema Society of Canada


National Eczema Association
Web site: National Eczema Association


The EASE Program (Eczema Awareness, Support and Education Program)
Address: PO Box 215, Place D’armes, Montréal QC H2Y 3J4
Tel.: 1-866-4ECZEMA (1-866-432-0362)
Fax: 514-288-5680
Web site: Eczema Awareness


Hidradenitis Suppurativa Foundation, Inc.
Purpose: The HSF is a San Diego-based non-profit public benefit corporation created to foster and encourage global research by developing and supporting an interdisciplinary family of scientists and physicians devoted to studying HS and its molecular and cellular basis. The HSF is dedicated to improving the quality of life for individuals and families affected by Hidradenitis Suppurativa.
Address: 7895 Via Belfiore #4, San Diego, CA 92129
Hours: Monday through Friday, 9:00 am – 5:00 pm, (Pacific Time)
E-mail: [email protected]
Web site: Hidradenitis Suppurativa Foundation


International Hyperhidrosis Society
Address: 520 Walnut St, Suite 1160, Philadelphia, PA 19106
E-mail: [email protected]
Web site: Sweat Help, Sweat Management


Lupus is a complex and baffling condition that can target any tissue or organ of the body, including skin, muscles, joints, blood and blood vessels, lungs, heart, kidneys and the brain. Lupus is a chronic disease caused by inflammation in one or more parts of the body and affects more than 50,000 Canadians. A common symptom of lupus is the Malar “butterfly” rash, a red rash that extends across the upper cheeks and bridge of the nose. Over 80% of people diagnosed with lupus are women in the prime years of their lives – between the ages of 15 and 45 years. Especially impacted are communities which include women of African, Caribbean, Asian and Aboriginal descent.

Lupus Canada and local lupus organizations strive to increase public awareness about lupus and provide educational resources to people living with lupus as well as their friends and family. Often known as “the disease of a thousand faces,” Lupus Canada provides the latest information, including strategies to live well with lupus, “ask the experts” section, advocacy resources and tools, and the latest information on lupus research in Canada. To learn more, please contact Lupus Canada.

Address: 590 Alden Road, Suite 211, Markham, ON L3R 8N2
Tel.: 905-513-0004 or 1-800-661-1468
Fax: 905-513-9516
E-mail: [email protected]
Web site: Lupus Canada


Lymphovenous Canada
The purpose of our web site is to link people in Canada with dysfunctioning lymphatic systems with health care professionals and support groups in their communities and around the world. Through this site we will keep you informed of some of the latest developments in scientific research and treatment in this area.
Address: 8 Silver Avenue, Toronto ON M6R 1X8
E-mail: [email protected]
Web site: Lymphovenous Canada


Lymphovenous Association of Ontario
Goals: Promote research towards improved methods of treatment and a cure of lymphovenous disorders. Raise awareness of the public, health care professionals and those affected by lymphovenous disorders with respect to the causes and treatments of these disorders. Foster an environment where persons affected by lymphovenous disorders can share their experiences.
Address: P M Postal Box 55241, 1800 Sheppard Ave East
E-mail: [email protected]
Web site: Lymphovenous Association of Ontario


Mastocytosis Society of Canada
Founded in 2003 to help people with Mastocytosis and related mast cell disorders
Web site: Mastocytosis Society of Canada


American Melanoma Foundation
Web site: American Melanoma Foundation


Canadian Pemphigus and Pemphigoid Foundation
Web site: Canadian Pemphigus and Pemphigoid Foundation


PRP Support Group
Goal: To inform others about the disease, to seek out any research being done, and generally to provide a forum for people to discuss their experiences and treatments. As well as this web site a mailing list has been set up for day to day discussions by individuals within the group.
Web site: PRP Support Group


American Porphyria Foundation
Web site: American Porphyria Foundation


Psoriasis Society of Canada
Purpose: To assist our affiliated chapters, and to represent their members’ needs on a national level: assist those who have psoriasis by providing up-to-date information on treatment, programs and services; form support groups across Canada; increase awareness of psoriasis among health care professionals and the public; consult with government to assist with programs and services; encourage research programs to find the cause and cure for psoriasis.
Address: PO Box 25015, Halifax NS B3M 4b
Tel.: 902-443-8680 or 1-800-656-4494
Fax: 902-443-2073
Web site: Psoriasis Society of Canada, National Psoriasis Foundation


Canadian Organization for Rare Disorders
Address: PO Box 814, Coaldale AB T1M 1M7
Tel.: 403-345-4544 or 877-302-7273
Fax: 403-345-3948
Web site: Canadian Organization for Rare Disorders


Rosacea Awareness Program
Established in 1995 in order to provide non-commercial information on this increasingly common, but relatively unknown skin condition that is estimated to affect 2 million Canadians.
Address: 368 Notre Dame Street West, SuIte 402, Montreal QC, Canada H2Y 1T9
Tel.: 1-888-767-2232
E-mail: [email protected]
Web site: Rosacea Awareness Program, National Rosacea Society


Scleroderma Society of Canada
Address: 95 Woodfield Rd S W, Calgary AB T2W 5K5
Tel.: 403-281-7616 or 866-279-0632
E-mail: [email protected]
Web site: Scleroderma Society of Canada, Scleroderma Foundation


Canadian Vitiligo Society
Address: Western Hospital, 8th Floor, Room 542, 399 Bathurst St, Toronto ON M5T 2S8
Tel.: 416-603-5953
Web site: National Vitiligo Foundation
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